Minister for Public Health, Shona Robison MSP, will be joined by families and individuals living with muscle disease on Wednesday 19 September to lobby Parliament and the Government to improve services for those living with the condition.

The 'My Life' campaign calls on the Scottish Government to make independent living a priority for people with muscle disease, by improving provision of powered wheelchairs and home adaptations.

Over 3,000 people with muscle disease living in Scotland have poorer access to vital support services than their English and Welsh counterparts.

Means testing for adaptations for disabled children has been abolished in England, but remains in place for Scottish families.

River City actor, Eileen McCallum, whose two grandchildren have Duchenne Muscular Dystrophy, said:

"At the moment the needs of my grandchildren are being met but I'm concerned about what the future might hold.

"Too often in Scotland wheelchair provision is inconsistent, inadequate and often subject to a postcode lottery. Mobility is a basic right - the technology is there and yet we're…